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Family’s Fun Run in Memory of Daughter Carrigan  

Family’s Fun Run in Memory of Daughter Carrigan  

Stephanie McKay, her partner Sean Ogilvie and their 1 year old son, Tierney, will be taking part in the Big Fun Run Glasgow on July 27th. They will be raising money and awareness for several different charities who helped them through the toughest few months of their lives.

PPROM- Preterm Premature Rupture of Membranes and BWS- Beckwith-Wiedemann Syndrome are the illnesses that they will be raising awareness for and they will also be helping the Ronald McDonald House Glasgow, and the NICU in the Queen Elizabeth Hospital.

Stephanie recalled the early part of her journey – “It all started when we decided we would have another child. Once I fell pregnant I was naturally very excited”

“My 13 week scan was not so straightforward. I was told that something didn’t look normal around the stomach area or the baby. We were told it could be 1 of 3 conditions – gastroschisis, exomphalos or a hernia. I was sent to Newcastle IVR fetal medicine unit for a scan where I was told straight away this was exomphalos. Luckily this is very treatable and within a few weeks we found out we were having a baby girl!”

“The next few weeks were pretty smooth until after 19 weeks we found out that my waters had broken (PPROM) and that I could go into labour at any time. Later that night we were told that I would probably miscarry the baby and I was offered a termination – I said no”

“At 24 weeks the doctors were talking about delivering baby. We got told the baby’s heartbeat wasn’t normal and was told it could be best to deliver. At this early stage chances of survival were close to zero. Throughout the whole pregnancy we were asked 3-4 times if we wanted to stop the pregnancy and we always said no”

“Shortly after we got transferred to Glasgow and was kept there for a week, at this point we decided to transfer our care to the Queen Elizabeth hospital as it was closer to family and had more support. All was ok a few scares in and out but we got to the 28 week point which is what the consultants wanted”

“On February 8th I went in for my regular check up and everything was fine until I was put on the CTG to check the baby’s heart trace. Our consultant was not happy with the baby’s heartbeat and decided it was time for a C-Section”

“At 19:09pm our little girl Carrigan Kathleen Ogilvie was born at an astonishing 5lb 2oz. We were amazed by her size thinking at 28 weeks 6 days for being so premature that this was amazing and would help her.”

“Carrigan had a very tough start to life where it was not looking good for survival but she fought so hard to get better. After 3 days she was showing great signs of improvement.”

“A couple days later we got the news that she had extensive bleeding to the brain. This was a major set back in Carrigans health as there was nothing doctors could do and it would slowly start to shut down her body. This was devastating news, we didn’t know what to say or ask. We literally just wanted to spend the last remaining time we had with her. We had called around and let family and friends know that after all the good news we’ve had over the last couple of days that it’s gone wrong for Carrigan.”

“The nursing staff dealing with Carrigan where truly remarkable in helping us make as many memories as possible with her. We managed to get cuddles and start using this time as comfort for us all.”

“As we always said we brought Carrigan into the world as a little miracle who fought so hard and we would allow her to decide when she wants to leave and give us a sign of when it’s time to turn the machine off. When her heart rate dropped drastically we decided that we didn’t we didn’t want her in any more discomfort. So with a huge lump in our throat and pain in our hearts we turned off the ventilation machine and let Carrigan go in her own time. She passed peacefully in our arms a short time later.”

“We are raising money for these causes and for the great work the NICU done with Carrigan and for us as a family throughout it all. We will also be donating to the Ronald McDonald House in Glasgow as they provide excellent services to families.”

“The staff at the NICU were fantastic and helped us create memories that will last a lifetime. They organised photographers and staff came to do casts of hands and feet. They organised a little memory box. They have been great through everything and we can’t thank them enough. We have visited them once since to donate some arts and crafts equipment to help any further families in our situation which we will continue to do.”

“The Ronald McDonald House were outstanding. As we stay in Carlisle, they provided a room for us to stay in, away from family to process everything from the birth and after the death on our own. After Carrigan passed we thought we would need to pack up and leave but that wasn’t the case. We were allowed to stay as long as Carrigan was still at the hospital and even then the house allowed us to stay longer if we needed it. They also stored some things for us until after the funeral that we had brought up to Glasgow.”

Big Fun Run Glasgow will be Stephanie and Sean’s first 5K event in memory of Carrigan. It will also be Tierney’s and they will be doing something special to mark the occasion.

“This is our first 5K and we decided to take part in Big Fun Run as it is an event for all the family we decided to take part so that Tierney, could join us in fundraising. We will be doing the Big Fun Run dressed as Disney princesses in memory of our own little princess.”

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2019. To find out more about the 2019 Series and find events near you, visit www.bigfunrun.com.

To read more about Stephanie’s story and donate, please visit: https://www.justgiving.com/crowdfunding/carriganogilvie8

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Five Reasons Why We Love Spring

FIVE REASONS WHY WE LOVE SPRING

After what seems like an eternity of cold, dark, wintry days and nights, there’s finally some light at the end of the tunnel – spring is firmly in sight! But what does this mean for us Big Fun Runners? Here are five reasons we love spring…

1. Calm after the storm
A wise man once said: “You never appreciate Spring until you’ve been through a tough Winter.” – and it’s the months of battling inclement conditions that makes the longer days, lighter nights and increasing temperatures all the more sweet when they finally come around.

2. Combine work and play
This is a great time to dust away those cobwebs and build some training into your daily commute to get more active on a daily basis. Why not make use of the longer days by integrating cycling or running into your journey and watch your fitness gradually move to the next level?

3. More mac, less mill
While treadmills make a great alternative to outdoor running when winter really bites, there’s no substitute for running in the great outdoors. The changing of the seasons is a great time to get out in the fresh spring air and explore new routes around your local area with your running buddy!

4. Time to Train
Spring marks the start of the running events calendar. So whether you’ve got a 5k, 10k or any other challenge event planned that you are looking ahead to, it’s the perfect time to kick start some training and in no time you will be harvesting the fruits of your labour, scooping up some well deserved medals and most importantly some memories that will last a lifetime!

5. Flower like a spring pansy
It’s time for you to come into your own, just like a spring flower. Once you’ve been motivated to get moving and your confidence grows, be prepared to blossom with pride at your progress.

A Big Fun Run 5K is the perfect event to aim for in 2018. Whether you’re running for fitness, fun, or to fundraise for a fantastic cause, there’s something for everyone! With 20 events taking place across the UK, find your local one at www.bigfunrun.com.

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Daughter Dedicates First Fun Run To Her Mum

Daughter Dedicates First Fun Run To Her Mum

In 2011 Jacqui’s mum, Juleen, was diagnosed with depression. Unfortunately, it was the wrong diagnosis and Juleen turned out to have dementia. Jacqui and her family had to come to terms with the devastating news.

Jacqui explained: “It soon became apparent it was more than depression and dementia was diagnosed. I was 47 when she was diagnosed. Alzheimer’s was not specifically diagnosed in the beginning, it was more towards the end of her life it was apparent.”

Alzheimer’s is a chronic neurodegenerative disease that usually starts slowly and worsens over time. The most common symptom is memory loss. This had a big impact on Jacqui’s life. Towards the end of her mother’s life it became very difficult to communicate, however there was one special way in which they would correspond!

“Mum very rapidly lost the power of speech and therefore there was no actual verbal communication with her – although she did respond to singing!

The Alzheimer’s Society helped Jacqui through some hard times and she hopes by raising money and awareness that others in a similar situation can benefit too.

“I did not realise before Mum became ill quite how many people dementia affected.

I found the information on their website very useful in knowing what to expect and also the stories of others going through the same thing.”

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart. This is Jacqui’s first 5K event. She has no previous running experience and what better way to motivate herself than to run for a charity so close to her heart.

“I am lucky in that I work for a leisure centre with a fabulous gym and so I started walking on the treadmill every day before work and soon progressed to some interval running”

Jacqui downloaded the NHS Couch to 5k app and signed up for the Big Fun Run.

“Following this I have been running regularly and have completed a couple of local Parkruns and can now manage a 5k run in about 40 minutes – not bad for a 54 year old who had never run in her life before! I felt I wanted to mark my first official 5k by raising some money and so found the Big Fun Run online and signed up.”

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2019!

To read more about Jacqui’s story and to donate please visit: https://www.justgiving.com/fundraising/jacqueline-cornaby

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Renal Services Run for CWKPA

RENAL SERVICES RUN FOR CWKPA

Over 60 runners from Renal Services at University Hospitals Coventry & Warwickshire (UHCW) are set to take part in Big Fun Run at War Memorial Park on Sunday 9th September.

The gigantic group are coming together to fundraise for small local charity The Coventry and Warwickshire Kidney Patients Association (CWKPA) to say thank you for the help and support the charity has provided patients since it was established back in 1979.

Mina Thakor, Renal Nurse at UHCW explained “We all incredibly appreciate the work that CWKPA does for our patients and we all want to help give something back”.

Big Fun Run events are the perfect way for the local community to fundraise for a cause they really care about.

“Many of us have worked in Renal Services for 25 years or more and have seen many changes during this time but the CWKPA have always been there to support us”.

Renal Services has a large renal department encompassing pre-dialysis, dialysis and transplantation departments in addition to satellite dialysis units across Warwickshire.

“The CWKPA are invaluable in all areas of support. It can be helping fund booklets to give information to patients to dialysis equipment to helping patients dialyse at home. They cover all aspects in our patients journey and interact with all members of the Renal Team”.

As such, Mina did not struggle to sign up recruits for Big Fun Run to support the charity. “We are all from a variety of disciplines; Nurses, Doctors, Dietitian’s, Ward Clerks and Secretary’s. We also have family members taking part in support too”.

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart.

“We are all different ages and capabilities in relation to fitness. Some will run, some will walk, some will stroll – you never know, we may even have a Mo Farah amongst us!”

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2018. Entries are still open for the Coventry event on Sunday 9th September, to find out more visit www.bigfunrun.com/coventry/.

To read more about CWKPA’s work and support the Renal Services Run, please visit: http://www.justgiving.com/CWKPA.

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Regan’s Fun Run for the National Autistic Society

REGAN’S FUN RUN FOR THE NATIONAL AUTISTIC SOCIETY

Regan Brentnall, 6, from Brimington, was inspired after his mum Natalie took part in Ashgate Hospices’ Sparkle Walk.

“Regan wanted to do something for charity the way I did. We found Big Fun Run which seemed perfect for Regan and also meant his little sister Kennedy could join in too” Mum Natalie explained.

Regan has autism and is fundraising to raise money for the National Autistic Society by taking part in the 5K Big Fun Run at Markeaton Park on Saturday 11th August.

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart.

“Regan doesn’t know what autism is and he also doesn’t know that he has autism. It’s never been the right time to tell him because he wouldn’t have understood” Natalie said.

The National Autistic Society are the leading UK charity for people with autism and their families. They provide information, support and pioneering services and campaign for a better world for autistic people.

After a friend mentioned Regan’s autism to him whilst playing a game, Natalie realised she had to find a way to discuss his condition with him in a way Regan could relate to and process.

“Him raising money for National Autistic Society at Big Fun Run is our way of helping him understand. He’s learning about the people he’s supporting and as the money he is raising is increasing, he’s getting more excited about helping these special people with Autism” Natalie said.

“When the time is right, we can tell him that he is one of those special, unique, kind, caring and different people”.

Regan’s autism impacts his daily life in a number of ways including his speech and relationships with friends.

“He can now speak perfectly but he struggles to communicate as effectively as other children his age. He also struggles to attach meaning to most things in his vocabulary and gets into conflict with his friends because of this which gets him worked up and frustrated” Natalie said.

“Every single person on the spectrum is different in their own unique and magical way and I want the ability to teach him that”.

“Regan is so sweet and kind and sees the good in everybody. He’s always giving us [his family] reasons to be proud of him and the fact he is doing this is another.”

“Hopefully after we complete this journey finding out he also has autism isn’t something he is confused by and instead is something he can celebrate!”.

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2018. To find out more about the 2018 Series and find events near you, visit www.bigfunrun.com.

To read more about Regan’s story and support his fundraising, please visit: https://www.justgiving.com/fundraising/regan-kennedydothebigfunrun

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Brave Teen Stroke Survivor to Complete 5K Fun Run

BRAVE TEEN STROKE SURVIVOR TO COMPLETE 5K FUN RUN

In January 2018, Chloe Jaques, 17, from Liverpool suffered from a sudden ischaemic stroke on the right side of her brain.

“I had a stroke in my bedroom and collapsed on the floor. I was rushed to A&E at the Royal Hospital where they carried out an MRI scan and found a blood clot on my brain” Chloe explained.

An ischaemic stroke blocks the blood supply to the brain and starves the brain of oxygen and nutrients. As a result, brain cells are damaged. The sooner someone is treated for an ischaemic stroke, the less damage is likely to happen.

“I was transferred to The Walton Centre which specialises in Neurology and put into a medically induced coma for 2 days while they performed a thrombectomy and removed 90% of the blood clot”.

Chloe’s stroke left her with swelling on her brain and severe weakness on the left side of her body.

“I was unable to hold things in my left hand and couldn’t walk anymore. I thought 17 was too young to have a stroke but it turns out my age was actually on my side during my recovery” Chloe said.

Fast-forward six months and Chloe is taking part in her first 5k event at Big Fun Run in Croxteth Country Park on Sunday 19th August raising funds for The Walton Centre as a thank you to the trust for saving her life.

Big Fun Run events are the perfect way for the local community to fundraise for a cause they really care about.

“The Walton Centre’s Neurology department is one of the biggest and busiest in the UK and they are the people that saved my life”.

“The care I received from the amazing nurses there was incredible. I then spent 3 weeks in the Stroke Ward at the Royal Hospital after my surgery at The Walton Centre and learned to walk again and work on building the strength back in my left arm and hand”.

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart.

“I am now able to thankfully walk as normal but have limited use of my left hand and suffer from extreme fatigue. Despite this I am determined to complete my first 5K!”.

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2018. To find out more about the 2018 Series and find events near you, visit www.bigfunrun.com.

To read more about Chloe’s story and donate, please visit: https://www.gofundme.com/qeh7yf-5k-run

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Sponsored Scoot for Motor Neurone Disease Association

SPONSORED SCOOT FOR MOTOR NEURONE DISEASE ASSOCIATION

6 years ago, Alison Pickard, 61, from Retford’s life was turned upside down when she was diagnosed with Motor Neurone Disease.

“I was 55 when I was diagnosed. We felt as though our world had fallen apart especially a few months later when our daughter announced she was expecting our first grandchild, I could only think that I would not live to enjoy grandparent-hood.”

Motor Neurone Disease is a degenerative condition that affects the brain and nerves. Over time, it causes weakness and loss of function in arms, legs, speech, ability to swallow and, eventually, breathing. There is a 1 in 300 chance of getting MND and there is no cure.

“It’s been difficult losing friends I have made who have MND but deteriorated more quickly than me. I have several more friends who are now cruelly limited by this horrendous disease”.

Alison decided to do something positive and say thank you to the charity who have supported her throughout the years following her diagnosis and has signed up to complete 5k at Big Fun Run in Rother Valley Country Park on Sunday 12th August.

“I will be taking part on my mobility scooter because MND long since took away my ability to run” Alison explained.

Big Fun Run events are the perfect way for the local community to fundraise for a cause they really care about.

Having received contact details for the Motor Neurone Disease Association after visiting Sheffield Hallamshire Hospitals’ specialist MND Centre, Alison reached out to them for support.

“I was visited at home by one of the Regional MNDA Care Coordinators who was absolutely lovely and really made us feel much less alone with my diagnosis”.

“We now attend the local support group through which we have met other people living with MND and there is a dedicated helpline available”.

“When I bought my mobility scooter the MNDA gave me a sizeable contribution towards the cost. In short, I basically cannot imagine coping without MNDA” Alison said.

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart.

Alison has never taken part in a fun run before and explained “I thought it would be nice to do some fundraising for MNDA and give something back. I saw the Big Fun Run advertised and decided to give it a go!”.

“As I tend to be known by my grandchildren as “Scooter Grandma” I’m looking forward to the Big Fun Run and living up to my name”.

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2018. To find out more about the 2018 Series and find events near you, visit www.bigfunrun.com.

To read more about Alison’s story and donate, please visit: https://www.justgiving.com/fundraising/alison-pickard

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Colleagues 5K Challenge for Children with Cancer

COLLEAGUES 5K CHALLENGE FOR CHILDREN WITH CANCER

A group of 7 colleagues from Charities Aid Foundation in Kent are completing 5k together at Big Fun Run in Mote Park on Saturday 4th August in aid of Children with Cancer UK.

2 year old Imogen Montague was diagnosed with Acute Lymphoblastic Leukaemia in June 2018 and a group of mum Kelly’s friends and colleagues have rallied together in support.

“Imogen has been such a tough little cookie and is dealing with all that’s thrown at her amazingly” family friend Vikki Denny explained.

“Life is pretty much on hold for Imogen and her family for the next 2 years until her treatment is over. Kelly hasn’t been working since Imogen’s diagnosis and her brother Brody is feeling the impact as Kelly needs to spend a lot of her time caring for Imogen”.

Vikki and her colleagues decided to do something positive and entered Big Fun Run to raise money for Children with Cancer UK.

Big Fun Run events are the perfect way for the local community to fundraise for a cause they really care about.

“After finding out about Imogen’s diagnosis we couldn’t imagine how her family were feeling and really wanted to do something to help other children and families in this situation” Vikki said.

Big Fun Run attracts people of all shapes, sizes and ages. No event is timed, it is all about participants having fun and raising funds for a charity close to their heart.

“Our team have been going on regular walks and jogging both during lunch breaks and outside of work”.

With an original target of £250, Vikki and her colleagues have smashed their fundraising and so far raised an amazing £1070 to date.

“We are raising this money for Children with Cancer UK in honour of beautiful and brave children like Imogen”.

The Big Fun Run promises a fun, relaxed atmosphere and is the perfect challenge to set yourself in 2018. To find out more about the 2018 Series and find events near you, visit www.bigfunrun.com.

To read more about Imogen’s story and donate, please visit: https://www.justgiving.com/fundraising/vikkidenny-2018bigfunrunmaidstone245

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Fun Run to Give Bereaved Parents the Precious Gift of Time

FUN RUN TO GIVE BEREAVED PARENTS THE PRECIOUS GIFT OF TIME

Denise Kelly is proudly running 5K at Big Fun Run Glasgow as part of a series of fundraising challenges she is undertaking on behalf of SiMBA to support their work as they create a new Family Room at the Princess Royal Maternity Hospital in Glasgow to give more bereaved parents the precious gift of time.

Denise will be completing her Big Fun Run alongside family and Chloe, mum of baby Ivy-Rose who they are fundraising in memory of. Ivy-Rose was born on 14th November 2017 at the Queen Elizabeth Maternity Hospital in Glasgow with an Exomphalos Major and severe Kyphoschiliosis. Due to her conditions, Ivy-Rose sadly survived for only 11 hours and 39 minutes, passing away in her mother’s arms.

Chloe had to make the heartbreaking decision to turn off her daughter’s life support. “What should have been the most amazing time in Chloe’s life was what no parent should ever have to go through” Denise explained. “She got to spend extra time making memories and saying goodbye due to the hospital having a Family Room”.

After being offered use of the hospitals Family Room Chloe said: “l spent my last night with Ivy-Rose in the family room and I literally just held her in my arms for the whole night. To be able to get my own space with my girl meant the world to me. It was just like we were at home; we had everything we needed in that room and it was the perfect last night together”.

Chloe wants to give something back and help develop a Family Room for the nearby Princess Royal Maternity Hospital to help even more bereaved parents have the extra gift of time. “The staff at Queen Elizabeth Maternity Hospital were amazing and gave me a chance to be a mum to my baby. They did everything they could to bring me peace and comfort during the worst time of my life” Chloe explained.

Denise is taking on her Big Fun Run challenge to support Chloe’s fundraising and said “she has already been fundraising and currently planning more. She really is an amazing young woman and I would like to help her in any way I can to support the Princess Royal Maternity Unit”.

To find out more about Denise’s fundraising challenge in memory of Ivy-Rose please visit:  https://www.justgiving.com/crowdfunding/denise-kelly-2

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Baby Franklin’s Fun Run

BABY FRANKLIN’S FUN RUN

Along with their friends Spencer, Lauren and Jade, Shaun and Dani are fundraising for SANDS to help them continue to provide bereaved parents with essential support.

“Until this happened to us, we were completely unaware of the extent of this situation and everything bereaved parents have to go through” Shaun explained.

Shaun and Dani were given a Bereavement Pack created by SANDS which includes essential information and advice when needed the most. They also received a “Remember Me” Box to save treasured memories of their son. The couple were also welcomed to support groups both in person and on Facebook. “Dani has been using the Facebook Group she is part of a lot and is really benefiting from it with people putting her mind at ease by sharing their stories too. The help and support on offer is truly amazing” Shaun said.

Having never completed a 5k run before, the group are currently taking up some training to complete their Big Fun Run the best they can.

“We see this as a challenge and are doing so to try and raise as much money as we can to help this charity and raise awareness of what they represent” Shaun explained. “Any donations would be greatly appreciated not only by us but by SANDS and Franklin too… you’d also be paying to have a little laugh on our behalf”.

Good luck to this top team in their Fun Run for Franklin. To support their fundraising visit: https://www.justgiving.com/fundraising/s-adams5

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